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A disease may be rare but hope should not be.

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Graham’s Christmas Pic

Our first Christmas with Graham was spent in the NICU

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Posted on May 11, 2017May 11, 2017 Full size 960 × 960

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About

I am a mom who lost my son to an awful, incurable mitochondrial disorder - Alpers' disease. This blog is my attempt to spread awareness about rare diseases and to encourage hope in the midst of it all.

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Home
Our Story
Our Mission
Blog Posts

Mito What?
Grief Support
Finding Hope
Parenting After a Loss
Giving Back to Graham’s Research Fund

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