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Graham is holding the first picture we took of us touching him

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Posted on May 11, 2017May 16, 2017 Full size 2573 × 2573

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Published inOur Story

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I am a mom who lost my son to an awful, incurable mitochondrial disorder - Alpers' disease. This blog is my attempt to spread awareness about rare diseases and to encourage hope in the midst of it all.

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