I have teamed up with United Mitochondrial Disease Foundation (UMDF) and organized an event to raise awareness and funding for mitochondrial diseases – Mimosas for Mito. As I learn more about mitochondrial disease, I am understanding mitochondrial disease isn’t as “rare” as I once thought. Instead people are simply unfamiliar with it. The type of mitochondrial disorder Graham had – Alpers’ disease is rare, but approximately 1 in 2,500-5,000, adults, teens and children are affected by mitochondrial disease, making it more common than childhood cancers. Yet, many people know nothing about mitochondrial diseases! I hope to change this. Mimosas for Mito will not only raise money to help UMDF’s mission to promote research & education for the diagnosis, treatment, and cure for mitochondrial disorders like the one which impacted our family’s life, it will also get people talking about mitochondrial disease! With greater awareness, there will be more funding for research, and ultimately there will be a cure. So come out to The Ivy Buckhead on Sunday, August 6th, have a mimosa with us, and support this wonderful cause!
You can find more information, and even more important, you can purchase tickets here: https://www.xorbia.com/events/mimosasformito/2017
Since this is our first event, spread the word and invite as many people as you can. We are also looking for items for the silent auction. If you have any items that you would like to donate, please email me at firstname.lastname@example.org. Together, we can make this an annual tradition to eat, drink, and raise money for a great cause!!