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A disease may be rare but hope should not be.

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Thanksgiving 2018

Carter’s first Thanksgiving, but also our first not at a hospital

Posted on November 27, 2018November 27, 2018 Full size 1284 × 1786

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Published inIt’s the Most Wonderful Time of the Year

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I am a mom who lost my son to an awful, incurable mitochondrial disorder - Alpers' disease. This blog is my attempt to spread awareness about rare diseases and to encourage hope in the midst of it all.

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